Cherry Blossom & SIDS

Hello there, it’s Elon here!

It’s the season of Cherry blossom again, spring is around the corner, though April in Boston can be still quite chilly and cold. As you can see, I was still wearing my winter jacket.

Cherry blossom was one of my last adventures with my family before I said goodbye to this world. It was so beautiful. Mama had given me cherries to taste before, it was quite good! So when they told me that we were off to see cherry blossom, I was picturing a tree full of yummy cherries, and had no idea it would look something like this! I liked it regardless, although it was somewhat disappointing that I can’t put them in my mouth. I LOVE putting everything in my mouth!

April also marks a year since I left my earthy body. Doctors at the Robert’s Program, a program dedicated to SIDS (Sudden Infant Death Syndrome) research, in Boston Children’s hospital had been studying on what may have caused SIDS to happen to me.

After a year long investigation on all my medical records, autopsy, genetics and family health history, doctors found that I had an abnormality in my hippocampus, a part of the brain responsible for memory. And the doctors suspected that may be what triggered SIDS on me. Past research shown that 40% of SIDS babies also had this type of abnormality in their brain. While there are many other causes to SIDS, I seemed to belong to this 40% group of SIDS babies. This is not something that could be tested during pregnancy or after birth, so unfortunately, not much can be done to prevent or cure this condition with our current understanding of medicine and technology.

Nevertheless, I’m so grateful that we had some of the world’s top experts on SIDS spending so much time and effort to research my case, I know that they helped my parents tremendously. Thank you thank you! I know my parents and sister missed me so much, just like how much I missed them.

“If there ever comes a day when we can’t be together, keep me in your heart, I’ll stay there forever.”

— Winne the Pooh

And they say, hold on to the ones you love
Keep ’em close to you
And they say, hold on to this time we have
And let the light shine through

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8 Comments

  1. Anonymous
    April 27, 2023 / 9:07 pm

    This is so beautiful – I am tearing up on the T. You are incredible, 冯爷。

    • onerollingleaf
      Author
      April 28, 2023 / 1:19 pm

      Hugs!

  2. Anonymous
    April 28, 2023 / 3:29 am

    When a baby is born, he/she holds a spot in mom’s heart. Elon has been with you <3

    • onerollingleaf
      Author
      April 28, 2023 / 1:19 pm

      Always have, always will <3

  3. Debbie
    April 28, 2023 / 2:31 pm

    Heartbreaking and hopeful. Love to our favorite Boston family!

    • onerollingleaf
      Author
      April 28, 2023 / 4:56 pm

      We love you Debbie!

  4. Yue Vaughan
    April 28, 2023 / 3:01 pm

    I am crying. No mother should lost her child. I am glad there are some findings and I hope it brought you some comfort and closure in a way. We love you and your family.

    • onerollingleaf
      Author
      April 28, 2023 / 4:57 pm

      Hugs Yue. Love you!

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